Personal info Child

Epilepsy info

Medications used (in chronological order)

  1. Carbamazepine (Tegretol)

  2. Ethosuximide (Zarontin)

  3. Phenobarbital

  4. Lamotrigine (Lamictal)

  5. Phenytoin (Dilantin)

  6. Gabapentin (Neurontin)

Alternative treatments

  1. IVIG

  2. Dextromethorphan

Personal Notes

Teagan had her first seizures in conjunction with a rotoviral
infection at age 12 months. Her seizures came with the
initial symptoms of the illnes and went away a week later
as she recovered.

Teagan's next seizures came at age 20 months. She had
110 seizures over a two week period. During that time,
she had a throat infection and a sinus infection. She
was put on Tegretol, but that was a disaster. She lost
her vocabulary (of 100 or so words), became hyperactive,
lost many of her motor skills and most of her congnitive
skills. We took her off tegretol, tried ethosuximide,
then phenobarbitol, but nothing seems to help that much.
Her seizures just went away as mysteriously as they came.

We used IVIG therapy each 3 months until one infusion
appeared to induce a seizure cluster. We used ativan
to break up her seizures this time. Teagan's EEGs
show generalized seizures which the neurologist thought
might be benign, and given our bad experience with
tegretol, we left her unmedicated for another year. We
used ativen PRN to break up her clusters when they occured.

At age 3 1/2, Teagan had another seizure flurry. This
time an EEG showed a clear focal origin in her right
temperol lobe. We used IV dilantin when the ativan failed
to give us control. We continued to use oral dilantin
while we brought Teagan slowly up to a therapeutic level
of lamictal. Then we tapered her off dilantin. We are
still trying to find an adequate amount of lamictal to
control Teagan's seizures. This past fall, at age 4 1/2,
Teagan had another cluster of seizures which required
IV dinaltin after ativan again failed to control the
seizures. After this experience, the neurologist added
neorontin to Teagan's medication. Since Teagan can go
so long without any seizures, we don't know if her
new medication regimen is helping.

Teagan tends to have her seizures in the fall and winter
during cold and flu season, but only when she is sick. Most
often, she has a lot of allergy symptoms with her seizures,
especially rubbing her nose and eyes. We feel there is
a connection between her allergies and her seizures, but
she is capable of having seizures during any type of illnes,
not just allergy-related ones.

Contact info

For additional information, please send e-mail to Richard (